How do people manage the symptoms of EoE?

Many people living with EoE adapt the way they eat, even before they know what’s causing their symptoms. The acronym IMPACT1 outlines these behaviours: Imbibe fluids with meals, Modify food (cutting into very small pieces, pureeing), Prolong mealtimes, Avoid hard-texture foods, Chew excessively, and Turn away tablets/pills.

These behaviours can reduce symptoms, but at the same time they mask the condition, prolonging diagnosis and allowing ongoing inflammation to damage the esophagus.

What is the cost of delayed diagnosis?

Since EoE symptoms also tend to be common to other conditions, it isn’t unusual for diagnosis to take quite some time. This condition often begins in infancy or childhood, which can be especially devastating as it might lead to failure to thrive and delayed growth in children who are unable to eat normally. Delayed diagnosis means delayed treatment and, without proper treatment, inflammation can progress to permanent damage and structural changes in the esophagus, including formation of esophageal stricture.

How can untreated EoE affect employees in the workplace?

Untreated or inadequately treated EoE has a drastic effect on an individual’s ability to participate in the workplace, as these individuals require increased access to health-care resources. There’s a social impact to quality of life, since eating is so heavily disrupted. There’s also a significant effect on parents or caregivers of those living with EoE, who often miss work to take care of their loved ones.

What treatments are available for EoE?

Unfortunately, there are only a few effective treatment options, with most individuals directed to make drastic changes to their diet, while some are prescribed off-label medications that don’t address the underlying disease inflammation. Currently, only two medications are indicated for EoE. It’s vital that patients have access to these medications, as well as new medications as they become available, to prevent worsening disease and increasing associated costs — both monetary and to an individual’s quality of life.

How can employers support employees with EoE?

The debilitating nature of EoE indicates the vital necessity for employers to provide coverage for medications that improve the outlook of those living with this disease. Understanding and flexibility are crucial, as EoE symptoms can affect an employee’s ability to work and require taking time off for medical appointments. Symptoms can also hinder an employee’s ability to enjoy social time with other employees during meals. It’s vital that employees and employers communicate and work together to foster a supportive environment.

For more information about eosinophilic esophagitis, so you can understand what your employee is going through, read the patient journey and watch the accompanying video.

All information was provided by Gail Attara, president and chief executive officer of the Gastrointestinal Society.